A Better Day

Evie had a better day today than yesterday, and she should be able to come home tomorrow!!!! The doctors today decreased her oxygen flow rather quickly, and as it turned out she was not able to tolerate it without her pulse-ox dropping into the 50's. So they went back up on the O2, and then decreased it gradually throughout the day. Right now she is at 2 liters (at home she has been on one liter), and they will probably keep her at that overnight.

She was kind of sleepy when I got there, but perked up when I walked in.




Her nurse asked me if Evie is a "twister" in her sleep! She certainly is, and here she is taking a nap sideways:




She even fell asleep with her tongue sticking out:



A little later, awake and hungry. She had not had any food by mouth yet, so she gulped Pedialyte and then threw up some of it. Then she gulped formula and threw up some of that.

After the formula barf, we gave her a bath and washed her hair. Her nurse made a silly shape with her hair...hmmm, that sounds familiar!

All combed and wrapped up!

Evie fell asleep after all that activity (and I did too)!

She woke up when she had to get another ultrasound of her belly (which she hated). Then she squirmed into another sideways position:

When I met Evie's nurse today, I thought she looked familiar. Eventually we figured out that since she used to work on the transport team, she was part of the group that picked Evie up at Edward's NICU and brought her to Hope when Evie was just 10 days old! What a small world! Here is her nurse, Casey, attaching some leads while I held Evie (10-18-07)!

(If you want to look back at that day's blog entry, click here.)

So overall, the trend with Evie seems to be "gradual is best." She did better with a gradual decrease of oxygen and sedatives. And when we gave her small amounts of Pedialyte every 15 minutes, she kept it all down. Francis will stay with her tonight and I will go back in the morning, and hopefully she will come home!