It's Sharon here... I had a good visit with Evie today. She looks more like herself since being on Tylenol and a mild "drowsy" medication, as opposed to the more powerful stuff. One of her 3 IV lines was removed and she does not have to wear the blood pressure cuff all the time, so each day now there are fewer things attached to her. She was also able to take a bottle today, and her oxygen flow has been reduced to one liter at 25%.
I was able to hold her again and got her to take a 2 hour nap. She needs a TON of sleep on a regular basis and especially now. But the staff has to check on her at certain intervals, so she wakes up more often. Francis and I will have to re-establish her sleeping schedule when she comes home ["Can't wait!" - Francis].
I have to say that the pediatric cardio nurses have been some of the best ones that have cared for Evie in her 4 1/2 months of life. We are hoping she can stay in this section of the hospital until she gets discharged. One of the doctors told me today that she is no longer receiving any treatments that would be called "intensive care," but she is still in the ICU section because there are no beds available in the regular pediatric section.
The nurses have been playing CD's for her and set up a pink crib mobile and a swing. They only have 1 or 2 patients per shift so they have lots of time to check on her. They really fuss over her and she adores them and watches them walk around her room. She hasn't smiled yet for them, but I am sure that's coming soon!
Evie is quite content after drooling on my shirt.
Getting so sleepy! Look at those heavy eyes and that big yawn in this short video!
Aaaaaaand... fast asleep. :)
20 hours ago
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