This morning we got a big and wonderful surprise: one of Evie's doctors called while we were on the way to the hospital and said they had taken her off the ECMO machine completely! Just like that - no weaning or anything. They just turned it off and watched her, and she did just fine.
The doctor explained that they had not given her any heparin, so they could not wean her from the machine because that would involve slowing it down. And slowing it down would mean clots would form, so instead they just shut it off. At her bedside, they were able to perform the surgical procedure of removing the tubing that had connected her to the ECMO. This is what her room looked like when we arrived:
They actually had the hallway blocked off so that no one could even walk by until they were all done with her. Here she is without those large red tubes coming out of her chest:
I know it still looks like she's hooked up to a lot of machines, which she is. But getting off ECMO was a BIG step in the right direction. The doctors gave Evie medication to paralyze her for 24 hours, because they said it was important that she be very still in the first day without ECMO.
On Wednesday they will close up her breastbone (they left it unsutured in case of swelling). From there they will start weaning her off her ventilator and decreasing some of her heavy duty painkillers and sedatives so that she is alert enough to breathe on her own.
We feel like this is the point where she should have been when she came out of surgery 11 days ago. She will probably be in the hospital for at least another week. We are so grateful for everyone's thoughts and prayers! Please keep 'em coming, though, until she's well enough to come home. We miss her like crazy!
Today was also a great day because Sharon's cousin, Susan, welcomed her new baby Erin Kimberly Stank into the world at 10:03AM this morning, 8 lb, 1 oz, and 20.5". Congratulations to the whole family, Daddy Dennis and big brother Sean!
20 hours ago
12 comments:
Hooray! I can tell by your smiles that you know Evie is on her way back to normal. Praying that she is home with you soon.
Judy Eipers
That is the best news ever! Evie is SO strong! Prayers for Evie and your family.
Jen Berg
Way to go Evie!!! We're so happy you are off the ECMO. One BIG step closer to coming home! Your Uncles David & Brad love you very much and hope to visit you very soon!
Way to go Evie!! I will keep praying for her. Please capture on video the moment Gavin and Evie are reunited...it will be priceless, I'm sure. What wonderful news!!!
Glad to hear of the really good progress. You look great Sharon. I pray God keeps holding you all up and healing Evie.
SOOO glad yesterday went so well. A big AMEN!!!! We will keep our prayers and good wishes coming your way!
Robin f.
We are SO happy to hear about the great progress!! We knew she could show them who's boss! :) You guys have to be so happy! God Bless you all!!
Yay! Great news. We can't wait to play with Evie again.
Felix & Pierre
So glad to see she is off that machine. We are all keeping you guys in our thoughts and prayers.
Eric Guthrie
HALLELUJAH!!! God really works wonders, doesn't He? Way to go Evie! We're delighted to hear about her progress! We can't wait to see pics of her awake and photogenic as ever! Hope Gavin (and Mom and Dad) are continuing to hang in there too! :)
Love to all,
Beth, Jimmy & Frankie
GOOOOOO EVIE! She is number one on my prayer list.
Hip hip hooray!!! We are so excited, and are keeping Evie in our prayers that she will be home soon!
Love
LV, Mike, and Keira
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