Evie Update - Day 3

Today we did not get all our questions answered. I am still waiting to hear what was said about Evie during the cardiac conference last night. We still don't know if it will be possible to schedule her angiogram or upper GI test during this visit.

The doctors have adjusted Evie's medications. She ended up getting a PICC line inserted after all, to better accommodate the new meds (dobutamine and fenoldopam). These are actually blood pressure medications, but given in the low doses that Evie receives, they help with kidney function. Also, the nurses can draw blood from the PICC line without sticking her, so they can get frequent lab reports on her electrolytes and such.

She had to be sedated for the PICC line insertion and she was pretty grumpy as she woke back up. She was only interested in snacking on her goldfish, but she did drink a lot of water. She especially liked drinking out of my cup and straw - just a plain styrofoam hospital cup - so I asked the nurse to bring one for Evie. She also fed herself today, something she didn't do yesterday.



Nana Cermak was there to keep Evie company:




Evie had her fist bath since Sunday! In the hospital, kids get bathed right in their beds (if they can't stand up in the shower). Here she is wrapped up in her towels, and not particularly happy about it either:



I held Evie as the nurse changed her bedding after the bath. Notice how swollen Evie's legs still are, and how shiny her skin is. The nurse explained that this is because her skin is stretched so much from the swelling. (Our nurse today, Marcy, was awesome! We have met so many nurses, and every now and then we meet one who is just the best, and we wish she could care for Evie every day!)



Of course, I had to re-do Evie's pigtails:

Nana stayed with Evie after I left to come home to Gavin (who is doing much better after four doses of antibiotics). Then Uncle David joined Nana in entertaining Evie. He reported the Evie burped and roared during the Abby Cadabby dinosaur video, and laughed as he recounted the story of a playdate last week that didn't work out.

Tomorrow we hope to get some more answers instead of more questions!