Day 22: Steady Improvement

I apologize to all our loyal blog readers: I gave you incorrect information yesterday about Evie's feeding tube. The tube she has is called a nasojejunal (NJ) tube. This one goes farther into her digestive system, into her small intestine, thus bypassing her stomach and eliminating the possability that she'll spit up the formula. The doctors need to check placement of the tube with an X-Ray and use a guide wire to insert it. That means that I can't reinsert it if she pulls it out at home!

Hopefully she won't need it for long. She just needs to eat more. The nurses told us that her stomach has shrunk after being on IV fluids for over 2 weeks. I just know she will eat better at home, in her high chair next to Gavin!

She should be able to come home some time next week, but we have no idea what day. The doctors want to see her lungs improve and they also need to completely wean her off methadone. She is improving slowly and steadily every day, and her doctors and nurses keep telling us how great she looks. Francis and I are happy to hear this, but it is getting really frustrating to hear it and to not be able to take her home yet.

Here you can see all of Evie's scars:



The nurses removed all of her bandages yesterday. I think her incision looks just like her previous two incisions did initially, and by now they have healed so well you can barely see them.

Here is Evie playing with her jewelry: