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Today Evie's dobutamine was stopped completely, so she is only on one IV medication. It is called Lasix, and it is one of the diuretics that she is on at home (oral version of course). The doctors will switch that over to an oral dose soon, and then we wait and see if her electrolyes and enzymes stay "balanced." If so, she should be able to come home soon. We keep trying to get the doctors to tell us specific dates, but they are vague about it. We understand the speeches that "every kid is different", and "we have to make sure she doesn't get worse again," but we are so anxious for her to come home!
Evie's appetite is getting better. Last night she ate a chicken nugget for Uncle David. Today she ate 1.5 chicken nuggets (and a few Cheetos) for me at lunch, then two more for Uncle David later on. The staff nutritionist is thrilled!
Also, Gavin has continued to speak new words every day, and one of them is "home." Today he used it in a sentence: "Mama home, "and "Dada home!" (We had been talking about who was home and who was at the hospital with Evie, and who was at the house with Gavin.)
2 comments:
Way to go Gavin! putting 2 words together! Awesome! Evie, keep getting better so you can go home and hear Gavin talk a blue streak!
I predict Evie will join Gavin in his conversations soon!!! Evie looks better and better every day. My love and prayers always!
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