Road to Recovery

Today was Evie's first full day home from the hospital and she is doing great! She slept a solid 12 hours straight last night and took a 3 hour nap during the day. Sharon gave her two feedings during the night through her NG tube and so Evie didn't wake up and didn't even know she was being fed! Nurse Nancy stopped by early in the morning and went over the PICC line meds administration once more, and also weighed Evie (10 lbs!).

She was very calm throughout the day, but there are few a still nagging issues. She has a horrible diaper rash that we are treating with a prescription cream. Thankfully, it doesn't seem to bother her too much except for when we're wiping her. She also had a bit of spit-up reflux today during two of her NG feedings. Not really sure what's causing that, but I think we do have a reflux med (we have meds for everything else; why not reflux?).

Evie was even talking a bit today and we had a lot of fun as a family just playing around, taking some pictures and laughing a lot.


Evie says, "I'm so much happier at home!"



When she gets a bit older, that smirk on her face in the photo above will mean trouble!

Below is a photo of Evie in her new Rainforest Take-Along-Swing. She enjoyed being in a similar sized swing the hospital so we picked one up for her, since she doesn't typically like being in swings, we'll take whatever we can get! We really like Fisher-Price's Rainforest collection of stuff, if only because the songs they play aren't annoying!




Gavin says, "Hey Evie, I think I found a spot on you that doesn't have any needle pricks!"



In the photo above you can see the pump that administers the antibiotics for Evie's blood infection through the PICC line in her arm. The thing takes about 8 "D" batteries, weighs a ton and looks like its design hasn't changed from the '70s. You lock-in the syringe and the machine slowly pushes in the plunger. One of the meds takes 20 minutes, the other one take 30 minutes.

We do this twice a day now, but luckily, she only needs to take the 30 minute med for another three days. We'll continue with the 20 minute med for another two weeks. After the main antibiotic meds are in, Sharon needs to connect two more syringes directly to the PICC line (no machine) and pumps them in manually.

It will be just the four of us on Friday, so hopefully Evie will sleep well again tonight, and we'll have a good day on Friday. Make sure you keep scrolling down and check out my second post of the day today, which is an adorable sequence of Gavin and Grandpa Vic that deserved its own post!