Day 21: The NG Tube Is Back

Today Evie slept for the first two hours of my visit. She apparently did not fall asleep until 3:30 am the night before! Her nurse said she wasn't fussing, just playing and looking around.

Her triple-lumen central line (the IV just below her collarbone) was removed today because an infection was found in it. They don't know yet exactly what infection it is, so we're waiting for the cultures on it. Thank goodness it is not the infection she had last year (Klebsiella)! They had to put an IV line in her ankle though, to compensate for taking the other one out.

Below, the purple things Evie is holding are little gel filled pads that heat up. The nurse put them on her feet to help her veins become easier for Dr. VanBergen to get her new IV line in. They are supposed to be on her hands as well, in case he needed to use a vein in her wrist or arm, but she pulled them off and played with them instead:

You can see the pads on her feet:

Evie ate well today, but unfortunately had a great big barf around 6:30 pm. The doctors put a nasogastric (NG) tube down her nose and into her stomach. She has had these before when she wasn't eating (or keeping down) very much food. The hope is that she will keep it down with the tube. (I am NOT looking for ward to inserting that tube again myself, but I want her home so badly that I 'll take her anyway I can get her, NG tube or not!)

At home, Uncle Kevin and Gavin share a reflective moment:

Then, the silliness ensued! Gavin got a tase of flying and LOVED it:

"Again, Uncle Kevin, again!"