Another Check Up

On Thursday, Evie had a follow-up visit with her regular cardiologist, Dr. Gulecyuz, at Edward Hospital. We were hoping to hear that Evie would be able to come off of some of the 12 medications she's currently taking, and also come down off her oxygen. She will be completely off her Ativan by Friday, so we are hopeful that her appetite will come back soon after.

Evie has been much more playful the last two days and we see more and more of her old personality trying to come through. Although weak, she has started crawling again just few feet at a time, and has even pulled herself up to a standing position once or twice. Slowly but surely! Sharon and I are also very grateful that she seems to be getting over her respiratory infection and the multiple spit-ups during the night have stopped. She slept 12 solid hours last night!

Here's Gavin giving Evie another of his now-famous blessings before her doctor visit.



Grandma Cordes went with Sharon and Evie to the doctor's office while Granpa Cordes hung out with Gavin at home. The girls got in a little hair styling time.



Isn't that how it always is at the doctor's office? You come in, get undressed, and then just sit there on the table half naked for a while, waiting. You can click on the picture below to get a better look at how Evie's scars are healing (all the docs say they're looking quite good!)




Dr. Gulecyuz thought that Evie was doing very well and she can come off of one of her diuretics and probably one of her blood pressure meds in a few days, and also her Bosentan. She's almost completely off of her oxygen. She came home 12 days ago at 1.5 liters, and now she's down to just a quarter liter. She has also been off the oxygen for up to 4 hours at a time with hardly any drop in her stats (except when she gets upset).

Dr. G. said that she should be coming out from the fog that she has been under from all these meds. We definitely see that from the way she has played with Gavin and her toys the past two days.



A little cuddling time with Grandpa Cordes after the doctor visit.

Gavin was very helpful with replacing the water cup in Evie's oxygen machine. He carried a half-gallon of water all the way across the kitchen!

Evie crawled all the way to under the kitchen table and tried to get some entertainment from all of the tubes taped to her face.